Weeks later, according to Irina Dmitriyeva, who runs Na Odnom Dykhanii — In One Breath — a non-profit organization dedicated to helping cystic fibrosis patients, those affected are still waiting for an answer. It was only through her role as an Instagram influencer with nearly 60, followers that she managed to get a course of the medication from Germany. Russian generics not being up to the task is what year-old Uliana Dotsenko believes killed her three-month-old son Dima, a cystic fibrosis patient, in June While the case is still in the hands of the Investigative Committee, Dotsenko plans to sue the hospital if investigators do not bring a case to prosecutors themselves. While changes in Big Pharma policy can cause a shortage of a specific drug in any country, Russia is a specific case because it has compounded the problem by implementing policies aimed at promoting domestic businesses and cutting spending. Since the beginning of , six young patients that she knows of that she knows of have already died, Dmitriyeva said. As the only remaining independent, English-language news source reporting from Russia, The Moscow Times plays a critical role in connecting Russia to the world. For a disease like cystic fibrosis, time is of the essence, as the average lifespan for patients in Russia is
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